Why Neurodivergent Labels Are Important

TIMELINE & LINKS/RESOURCES

00:23 The Importance of Labels in Neurodivergence

02:15 Addressing Ableism and Misconceptions

04:08 The Consequences of Avoiding Labels

06:56 Reframing Labels as Empowering Tools

08:09 Personal Experiences with Labels

14:30 How to Talk to Your Child About Their Diagnosis

22:52 The Validity of Self-Diagnosis

24:48 Final Thoughts and Encouragement

How often have your heard a parent say that they suspect their child is autistic or ADHD but they don't want them to grow up having "that label"? In this episode of the Neuropositive Podcast, Phyllis discusses why neurodivergent labels are important and the power of talking openly about them with our children.

The Power in a Label

Something that frequently pops up in discussions among parents and caregivers is the question of labeling. Many parents opt out of getting a diagnosis for their children to avoid the 'negative label.' But what message does that send to the child? When a parent decides not to share or pursue a diagnosis of neurodivergence, it may reflect an ingrained belief that such labels are inherently negative. This viewpoint is rooted in ableism — the belief that being neurodivergent is something negative that should be hidden or downplayed.

By avoiding these labels, parents might unconsciously communicate to their children that being autistic, having ADHD, or any other form of neurodivergence is undesirable. In contrast, embracing these labels can open doors for understanding, accommodations, and empowerment.

Access to Support and Services

One critical reason to embrace labels is that a formal diagnosis often opens up access to beneficial services and accommodations. Consider how we readily seek support when a child is diagnosed with a physical ailment. If a child is nearsighted, we help them get glasses. If they have a chronic illness like diabetes, we ensure they get the medical care they need. The same principle should apply to neurodivergent conditions.

Not labeling a child can deprive them of necessary supports, potentially affecting their ability to thrive both in school and later in the workplace. It's important to remember that labels can guide us in providing the right support.

Controlling the Narrative

It's important to acknowledge that children will be labeled by society one way or another. However, if we can direct this narrative positively, we provide our children the tools to understand themselves better. Using Phyllis Brasenow's example, she reflects on how, growing up undiagnosed with ADHD, she was labeled ‘lazy’ or ‘disruptive’ — labels that could have been avoided with awareness and understanding of her neurodivergence.

If a child is empowered with knowledge about their neurodivergence, it enables them to self-advocate. They understand why they might struggle with certain things and can communicate their needs effectively. Imagine swapping negative complexity with the simple clarity and empowerment of knowing, “I am autistic. This is how I thrive.”

Having the Conversation

So, how should parents talk to their children about their diagnosis? The key is a straightforward and matter-of-fact approach. Describing a child’s neurodivergence in simple, positive terms fosters empowerment rather than fear. Parents should aim for honesty and simplicity, adjusting their conversation to be age-appropriate.

When Phyllis talks to her daughter about her diagnoses, she does so regularly and positively, ensuring her daughter understands both the challenges and strengths these differences may bring.

Empowering Through Understanding

Ultimately, recognizing and discussing neurodivergence helps children become more prepared to handle their unique needs. Even in the absence of a formal diagnosis, understanding the markers of neurodivergence equips them with a better sense of self.

Parents’ mindfulness in how they approach these topics carries enormous weight. Remember, it's not just about surviving life’s challenges but thriving beyond them. Embrace the label and reshape the narrative. It's society that associates negativity with these labels, not the label itself. With acceptance and understanding, a whole new world of opportunities open up for children to advocate for themselves, find their communities, and live fully knowing and accepting who they are.

For parents still on the fence, contemplate the power in these labels. They’re not limitations; they’re keys to unlocking potential.